Monday, February 28, 2011
Realizations
Today is my first free day in about forever. I had a melding of my two lives this past weekend; five days of talking about animal wellness/cancer/nutrition and two days of singing 17th century French music.
I say "my two lives," because sometimes that's how it feels. I am two different people, who live two dramatically different lives in two very different places. The cancer crusader lives in Kankakee, Illinois, and spends her time not only taking care of her own clan of animals, but also fighting to promote wellness for other pets. She is selfless and sacrificing, and wants what is best for others. The professional singer lives in Kankakee, Illinois but works in Chicago, and spends her time driving back and forth, entertaining people and practicing and studying. She is selfish and egotistical, and while she wants to bring joy to others through her music, she really wants to feel good about herself and her art. I'm not an entirely selfish person as a singer; I really honestly do want to make a connection with my audience. But I don't think you can make it in the entertainment world without a little big of ego (with all the rejection, you'd be a muddy pile of depression if you didn't think you were pretty good).
Because my two lives are so far apart not only in style but also geography, I've struggled for a while with how to fit the two together. Can I fit the two together? Spending this weekend with both selves, I didn't come up with a solid answer, but I think I got closer.
You see, the cancer crusader got to talk to a lot of parents about nutrition and wellness. With some, it went in one ear and out the other. That's the nature of life. But with others, I could see the light go on; something "clicked" for them, and I could see it. That's what I live for. That moment when you know that what you've just said will make a difference for that person, that what you said will change the life of their pet. I'm fairly certain I convinced a few parents to stop feeding corn-based foods in favor of holistic, human-grade products. Call me crazy, but that kind of thing gives me a high. I rock.
But then the singer got to do a performance for a (decently) large crowd, and while she did make one significantly (to her) large mistake, she didn't mess up where she expected to, and probably no one noticed anyway. Hopefully. I heard some really positive feedback from people in the audience, and while it feels great to have exceeded your own expectations, what really feels great is to know that the audience is happy. My colleagues and I put on a great concert. I love working with these people, making a connection with them, and making real music. That rocks too.
I think I've been trying to talk myself into being either the cancer crusader or the singer. But I think the answer lies in finding a balance of both. I would never give up fighting for animals, but I don't think I'd be happy without singing in my life. So while it complicates my life (a lot), I have to find a way to let the two me's live in harmony, if you'll pardon the pun.
Friday, February 25, 2011
Gus is Hazardous to My Health: Part Two
A few months ago, I started The Great Finger Saga. A bunch of crazy things happened, and I never felt it was the right time to finish it. But because I had already started most of the post, and because it only required a little tweaking, (and because it's lazy blogging week--yay!), here is my tale of raging infectious disease.
They called me to surgical prep pretty quickly, and luckily they didn't offer to let Jim accompany me just yet, because I wouldn't have let him come anyway. He's medically squeamish, and has passed out before, so I wasn't letting him anywhere near needle insertion. I'm not afraid of needles, blood, or urine specimen cups, so pre-surgical was a breeze for me. They let Jim and my Dad (who came to wait with us) back into my prep room, and then the hard part came. The waiting. And the waiting.
Luckily, I got visits from the my infectious disease doctor and my surgeon. That helped pass the time. Finally, the anesthesiologist came in, and then I knew the ball would get rolling. My OR nurse finally came in, and it was time to GO! I was so ready to get it over with.
Being rolled into an OR is a scary experience. They took my glasses off (which meant I was blind as a bat), so my view of everything was fuzzy. That's ok though, because my view was mostly of the ceiling. When I got into the OR, it was cold and bright, as I expected, having watched lots of television. (See? It's totally good for something.) There were a lot of people running around doing lots of things that I'm sure pertained to me somehow. The OR nurse never left my side and explained everything that was going on. The anesthesiologist was ticked off because her computer that keeps track of medications wasn't letting her log in, so they had to bring in some other guy to help her. It was a tad disconcerting, since you want everything to run smoothly. My awesome nurse came in close, touched my arm, and said, "This has nothing to do with you. You are totally fine. It's just a problem with the computer that keeps track of medications for billing. Don't worry." So then the other two anesthesiologists heard her, thought, "Oh, maybe we're freaking out the scared patient," so they both came over and laughed and said, "Oh, no, don't worry, you're totally fine." OK. Let's get this OVER WITH!
The plan, because I'm a sort-of-professional singer, was to avoid intubation at all costs (because they shove a plastic tube down your throat, pushing aside your vocal chords). The plan the doctors came up with was to give me several shots in the nerves of my affected finger, to numb it, put me under heavy sedation, and then do a light dose of general anesthesia over that, but only use a breathing tube that goes to the back of your throat. This was fine with me. I had two criteria: (1) avoid my vocal chords, and (2) make sure I am dead to the world. But not literally.
I was afraid of that nerve block (a needle in your nerve has to hurt, doesn't it?), so both my nurse and I requested sedation prior to that. The doctor said I might feel it just a little, but all I remember is the anesthesiologist telling me she was injecting the sedative, the nurse holding an oxygen mask over my mouth, and then....nothing. Versed, you are a wonderful drug.
The next thing I remember is coming to in the recovery room, or perhaps being wheeled there. I vaguely remember the anesthesiologist asking me to sing...maybe. God only knows, when you're coming out of anesthesia. I do remember coming to, and it didn't take long. My eyes wouldn't focus for a while, and I was dreadfully thirsty, and my throat hurt. Some nice person brought me my glasses so I could see. Then I could watch my vitals monitor, which had the time on it. Large chunks of time would pass, even though it felt like time was going slowly. I don't think I slept, but apparently, I zoned out big time.
I remember the first thing I did after waking up was look at my hand. I had a small fear going in that they would have to amputate my finger, so I had to check to make sure it was still there. It was. It was wrapped up into a giant club, and I couldn't feel it at all, so that was good. I just stared at it for a really long time, inspecting it. It probably looked weird to the nurses, but I suppose they're used to that. I heard all kinds of crazy from the other patients in the room.
An hour or so later, two techs came to get me to have my PICC line inserted. If you're not familiar with a PICC line, PICC stands for Peripherally Inserted Central Catheter, or Evil-Medieval-Torture-Device-That-Made-My-Life-Hell-But-Actually-Allowed-Me-To-Do-My-Own-IV-Treatments-At-Home-Instead-Of-Having-To-Be-In-The-Hospital-Or-The-Nursing-Home-For-Six-Weeks. You see, one of the problems with treating osteomyelitis, which is what I had, is that it requires really strong IV antibiotics daily for six weeks. So in otherwise healthy patients, the hospital inserts a plastic catheter in the fleshy part of your upper arm and threads it through a vein until it reaches your superior vena cava, one of the main arteries coming out of your heart. This is done using ultrasound and x-ray, which was kind of cool, but also super creepy. I was worried I would feel the catheter snaking its way into my heart, but I didn't. I won't say that the procedure hurt, because that's not quite the right word, but let's just say I hope never to have to repeat it.
Once that was done, the techs kindly let me use the bathroom (hours and hours of IV fluids + a normally weak bladder = extreme discomfort). They also gave me a glass of water, so they were at that moment officially my favorite people of the day. (No offense, OR nurse Jody-you're my fav too)
There was some confusion about which room I would be going to following surgery, even though I had been told 325 hours before, and I kept saying, "I was told 325." Eventually, where did I end up? 325.
I was pretty darn awake at this point and feeling no pain. The nurses were really nice and got me set up with a morphine pump (which I saw as a challenge--I WILL NOT USE IT!) and got me as comfortable as possible in my room. My family all came to see me that night, and though I didn't think I was hungry, by the time dinner made its way to me, I was STARVING! My biggest complaint the whole time I was there was a nasty migraine that wouldn't go away. You'd think that in a hospital, they could fix that, but all they could give me was extra-strength Tylenol. Thankfully, I slept better than I expected, and in the morning, after breakfast, my migraine finally eased.
I had the nicest nurses while I was there. I have several nurses in my life, so I know they work really hard, are underpaid, and get treated like crap half the time. I know to be really appreciative of all they do. But these women were so kind and so laid back, and I am grateful to them for taking such good care of me!
In the morning, I woke up and knew I needed to go home. Come on, people, let's get the ball rolling. Thankfully, my daytime nurse was behind me 100%, so she did all she could to get me home ASAP. I had several doctors to see first, but luckily, they all came at almost the same time, and I got that out of the way. The nurse unwrapped my hand, and I got to see my incision for the first time. Gag. The surgeon had put a cotton pack in it, so when the nurse removed it (which I thought would hurt, but it didn't), the hole was gigantic! I am not a squeamish person, but I seriously couldn't look at it. Then blood started to ooze out. And the surgeon wanted me to start physical therapy on it right away. That actually didn't hurt at all, even though I had regained feeling in my finger at around 3am that morning. But it was gross that blood would seep out of the wound every time I bent that joint. Ick. Wanna see a picture of it, a couple of days post-surgery? It's kind of gross, be warned.
I actually have a small scar still from it. .
It's the little things, people.
Thanks to massive amounts of probiotics I was taking to counteract the massive amounts of antibiotics going into my body, the only side effect I had from the medicine during treatment was extreme tiredness. My worst day was the day I had to lean against the washing machine and catch my breath after putting in a load of laundry. This, three months after running a 5K.
Since stopping the antibiotics, I'm still not 100%. A few weeks after finishing treatment, I got suddenly, violently ill, two days before Christmas. I almost ended up in the hospital, and for a while, I might have welcomed that. My doctor suspected C diff, a secondary bacterial GI infection caused by the die-off of good bacteria in my GI tract. So I was back on antibiotics; oral Flagyl this time. That took care of the vomiting and the worst of the other-awful-GI-symptoms-that-you-all-know-what-I'm-talking-about, but the other-awful-GI-symptoms-that-you-all-know-what-I'm-talking-about lasted for about another month and a half. And I have some memory issues (I can't remember crap right now), which my neurologist thinks is from the antibiotics and should go away eventually. So osteomyelitis kind of ruined my life. At least for a while. But I learned a few things; (1) I plan to take good care of myself and never, ever get sick for the rest of my life, and (2) never, ever pick Gus up when he's mad.
Thursday, February 24, 2011
My Quirks as a Parent
Wednesday, February 23, 2011
Things I Love Today
I had a kind of rough day yesterday (any day that involves jumper cables, police cars with their lights flashing just for you, and a tow truck is destined not to be the best day ever). My week is already really busy, with me spending all week volunteering at the IKC Dog Show (13-14 hour days, no time to sit down, one 5-minute lunch break, babysitting an extra critter this week along with caring for my own (beyond time-consuming) clan, a rehearsal and a big concert on Sunday...yikes! I'm already freaking myself out!). Now I'm down one vehicle (please, please, please be done by noon today!), and I have to get myself up to Chicago late this afternoon to begin set-up. *Takes deep breaths*
I'm trying to be zen about the whole thing, because I have control over so little of it. So in honor of that, today's post is about things that are making me smile today:
I love that Gus tries to play with Mr. Squiggles, and because he plays too hard, it makes Mr. Squiggles mad.
I love Isis won't get into bed until after Jim and I have both gotten out of it.
I love that Samson has started sleeping with us at night, finally, after being a member of our family for 14 months.
I love that the minute I sit down on the couch, Mr. Squiggles heads over from anywhere in the house to sit on my lap.
I love that Indiana will always, always eat her freeze-dried patties with her liquid gold medicine. Good girl!
I love that Indiana has been getting up on the bed, all by herself!
I love that Q*bert has no self-control when it comes to food, and that he runs around crying like an idiot while we're preparing meals.
I love that it's getting warmer outside, which means Indiana can sit outside as long as she wants.
I love knowing that I have a house full of kitties, happily sleeping somewhere, usually where I can't find them.
I love that in 5 days, my hell week will be over for another year!!
Tuesday, February 22, 2011
I Could Not Live Without This Product
You're welcome.
Monday, February 21, 2011
Tidbits
We are on Day 8 of Indiana's Poly-MVA treatment today, her second day on a full dose. I think she's feeling a little off this morning. She ate some of her breakfast but rejected part, which she hasn't done in a while. I think she's having some detox issues (it can make them feel a little sick). Not only is she acting sick this morning, but she's been super, super itchy the past several days. This doesn't make any sense, because (a) she doesn't get any grains or any "inflammatory" foods in her diet, (b) it's the middle (end?) of winter, so there aren't a lot of allergens or even any darn fleas. My gut instinct tells me it's a detox reaction (her body ridding itself of toxins via the skin). My gut's usually right.
Also, and this sucks, but I think her tumor is a little bigger too. It lays on the part of her back that she's been itching, so maybe it's inflamed from her chewing. I also wonder if maybe it has something to do with the Poly "doing it's magic." Maybe killing off the cancer cells causes inflammation. I don't know. But I'm not freaking out about it, and that usually means there is a simple reason for the problem. There are advantages to being so mentally connected to your pet! (Does that sound crazy?)
All-in-all, we've had worse problems with drug detox. In fact, one medicine worked so well that we simply couldn't keep her on it. She felt so sick and I just couldn't bear to see it. So this one, so far, isn't too bad. We'll continue with the plan, and if she feels worse, we can always back off on the dose for a while.
I was really hoping that my vacation a few weeks ago would be a magic fix to the winter blahs I've been having. It was wonderful to get away, and don't get me wrong, I really needed it, but I feel again like I need a vacation! I'm super moody some days, and I get really down on myself easily, for the stupidest mistakes. I forget sometimes that I'm human, that it's ok for me to make mistakes. And the thing is, I make mistakes all the time. So I need to let up on myself and just do the best I can.
One good thing that happened yesterday: I am heading to Boston in May for the Paws 4 A Cure Fourth Annual Walk! Paws 4 A Cure was founded by one of my pet cancer friends, and it raises money that goes towards cancer treatments for families who can't afford it. I'm really happy because I'll get to meet a lot of old friends, finally, in person, people who have been with me through my darkest hours (and I theirs). We're friends for life, and it's so sweet. I am so happy that I'm getting to go and show my support for Paws 4 A Cure and walk in honor of my own brave cancer fighter!
Ummm...speaking of which, did you know you can visit Great Good Heart's CafePress store and order t-shirts and other merchandise showing your pride for your cancer survivor/fighter? We have several different slogans available for purchase, and all of the proceeds go to animal cancer education and awareness!
Dang, I have blog ADD today. This week is the big International Kennel Club Dog Show. We do it every year, thanks to our kind supporter, Karen Baker, our local distributor of Artemis Pet Foods. She gives Great Good Heart a section of her booth, and in return, we help out by talking about Artemis Foods. This is our fourth year at the show, and it's always A LOT of work, but a lot of fun too. I get to talk about nutrition and other wellness issues and help some cancer parents along the way.
This year, it's been hard to get ready for the show. So much of my energy goes to helping my own dog; how do I have enough left for other people's dogs too? But I do. I'll dig deep and find it, and when it's all over, I'll feel good about what I've done.
Friday, February 18, 2011
It's Tough, But Not Really
This post is written with apologies to Dr. Becker; I listened to you, I really did. I took the rest of your advice, just not the part about not blogging about it.
Indy's been doing really great. I can't quite explain why (though I suspect it has something to do with the decrease in stress in her life), and I certainly didn't expect it (though I did hope for it with all my heart). She's really a fighter, and you'd think that after all these years, I'd be used to it. It slays me every time.
We had our twice-monthly visit with our vet on Tuesday, and Dr. Becker was pleasantly surprised when Indiana stood up to greet her when she walked in the room. She was getting around really well, and several staff members commented on it as well. I felt such a surge of pride that my girl was doing so well. I stake no claim on that accomplishment; it's all her doing.
Anyway, Dr. Becker and I discussed running tests on Indiana, or, rather, not running tests on Indiana. Dr. Becker feels (and can she read my mind? Because this has been in my thoughts for weeks) that we shouldn't run any more "unnecessary" tests on Indy; i.e. basically only treat symptoms. (And test her kidneys, because we can alter her fluid intake to make her feel better, if necessary) On a bigger spectrum, that means no more cancer tests at the U of I or Purdue.
As Dr. Becker pointed out, this goes against everything I have learned as a parent in the last four and a half years. I have learned to be proactive, to catch things before they become a problem. And now, I'm going to stop looking for problems...especially cancer? In a word, yes. Indiana's stress tolerance is really low these days, and after all she's been through, she deserves to live as stress-free as possible now.
But what if the tests show cancer, you ask? Indiana has maxed out on the most common chemo drug, doxorubicin (thanks to cancer #1), and I doubt her frail system could handle any other chemo drugs at this point. We've already started her on Poly-MVA, the most "drastic" of our options. Plus, we won't put her under anaesthesia for surgery. So, armed with the potential knowledge that she has yet another form of cancer, what would our options be anyway? It seems selfish to put her through all of the tests with no benefit gained.
As Dr. Becker so elegantly put it, every decision we make at this point is about respecting Indiana. Respecting her needs, but more importantly, respecting her wants.
Maybe to some pet parents, it sounds like we're giving up on her. We certainly are not. We are armed with a powerful arsenal of holistic medicines and Chinese herbs as well as a crack team of veterinary specialists. I live every day at her disposal, making sure she gets healthy foods, but ones she loves and will eat. I painstakingly hide her pills and powders inside tasty tidbits, so she thinks she's getting yummy (yucky) things like liver sausage. And, as we've learned is so important, I listen to what she is telling me, making sure she is happy, calm, and as mentally stimulated as she can be. She has so many needs, yet so few wants, and it's my job to make sure she gets them.
Thursday, February 17, 2011
Thoughts For a Friend
It's tough watching my friends go through these diagnoses and treatments, especially when it's dog #2 or 3. Though only a handful of us have met in person, my cancer friends and I know each other so well. We have connected at the most basic level--over the purest form of love--and it's impossible not to bond. Therefore, when one of us suffers, we all suffer.
So seeing my friend go through this, not only do I understand her pain, I am helpless to do anything for her. We are separated by thousands of miles. But my heart, and my thoughts, are with her and Sophie. Love knows no distance.
Wednesday, February 16, 2011
Having It All Figured Out
Tuesday, February 15, 2011
Poly-MVA Day 2
Sorry to be absent all of last week as well as yesterday. Jim and I were on a much-needed vacation last week. We missed the kids, but they all did great without us. I'm not even sure we were missed!
And yesterday, well...I meant to post, but I got lazy. Then we had a diarrhea issue that required a change of Valentine's Day plans and an impromptu bath in a kiddie pool in the utility room with a garden hose. Yeah, we do it up classy-style here.
Just to be clear, the diarrhea issue was dog-related, not me or Jim.
We started Indiana on her Poly-MVA yesterday. This may or may not have caused the diarrhea. We had been warned to look for signs of detox, but can detox happen in 10 hours? I don't know. Indiana seems to be feeling fine, and we haven't had any more explosive diarrhea. (Plus now her shiny, fluffy hair matches her bright, shiny, happy eyes)
The main "job" of the Poly-MVA is to shrink the tumor on Indy's back, but it has other potential benefits as well. Most promisingly, it can potentially help her arthritis. I think I'm more excited about this effect than any other. Yes, I want the tumor to shrink, but this medicine also can give her more energy and decrease her joint pain. If it does any of those things, I will consider it a success. For now, Indiana is feeling good, and that's great. I will be watching her closely every day, especially as we increase her dosage, and will be hoping for significant improvements over the long-term.
Monday, February 7, 2011
Blog Vacation
Friday, February 4, 2011
A Fairy Tail
Once upon a time there was a beautiful princess named Jen. Princess Jen owned lots of cats, and this was good, for Princess Jen loved her cats with all her heart.
Princess Jen and her handsome husband Prince Jim lived in their castle full of cats. Sometimes the cats would fight, but over time, the cats grudgingly accepted each other, and peace reigned in the Schneider castle.
Then one day, evil Old Man Winter descended upon the Schneiders. He took away the sunshine and made the world cold. The tenuous hold on peace that the Princess had gained was suddenly ripped away. Cats fought with cats; floors, and even boots, were peed upon. With their precious outdoors a winter wasteland, the Princess' cats started to grow mad from the seclusion.
One night, as the Princess attempted to slumber in her bed (and the Prince was off fighting Nuclear Power in the far off lands of Braidwood), the cats began a war in her home. No sooner would the Princess drift off to sleep than she would be ripped out out of it by the battle cry of the cat. The Princess sprung from her bed, armed with her trusty squirting water bottle, prepared to do battle amongst the cats. After multiple attempts, a shaky peace was achieved in the Princess' castle, and she was able to crawl back into bed, finally, after several hours.
Just when the Princess thought all was well in her home, the light of dawn brought another round of fighting. The cats had agreed, reluctantly, to a treaty of peace the night before, but the Princess could tell that these promises could easily be broken. The threat of the trusty squirting water bottle was enough to coerce the cats back into their corners. Secure in the belief that peace had once again been restored in her home, the Princess returned to bed.
Minutes later, she was awoken by an intruder in her bed. What did the intruder intend? Which of the cats was it? Alas, the Princess could not be sure, for the intruder ran off at the sound of the Prince returning from his quest. Awakening from her sleep, the Princess realized that the intruder had invaded her territory not only to drive her mad, but also to pee in her bed. Twice. The Princess suspected that her home had been invaded then by not one, but two cats during the night. She would never be safe again.
The Princess, having been dominated by the cats, arose from bed to feed them, lest they get very angry and pee on more things. The cats continued to fight, until the Princess declared that she could stand no more. Desperate with fear and frustration, the Princess took to the couch, seeking refuge in her beloved Facebook.
Seconds went by before she was approached by one of the cats. But this was no ordinary cat. This was the brave Mr. Squiggles, a calm, peaceful warrior, who though fond of peeing on carpeting and shoes, never, ever peed in her bed. Mr. Squiggles crawled upon her lap and fell asleep, content to simply be in the presence of the Princess. And while the Princess could still hear the far off sounds of cats fighting, she ignored them. The sun was shining, Old Man Winter would some day be leaving her lands, and all would be well once again in the castle. They would live Happily Ever After.
The End.
Thursday, February 3, 2011
No Such Thing As Karma
Luke's walk is done, but his work is not. He continues to raise awareness for animal cancer through his Two Million Dogs campaign. This organization forms a network of pets and parents fighting cancer as well as cancer researchers to try to someday establish links between animal and human cancers as well as what causes them. Luke has lofty goals and has impressed me from day one with his determination and fierce love for his boys.
Admittedly, after Luke's walk concluded, I stopped paying close attention to his work. Only today, after a Facebook post from a friend, did I discover that Murphy, Luke's oldest Pyrenees, has cancer. Nasal adenocarcinoma, to be exact. Nasal adenocarcinoma is a particularly aggressive form of cancer. Unfortunately, Murphy has undergoing radiation, though unsuccessfully. His tumors continue to grow. Luckily, Murphy has Luke on his side, and some of the best doctors in the business. You can read more about Murphy on Luke's blog.
I was really sad when I heard about this today. I "knew" Luke briefly back when Malcolm was ill, as we both were members of the same online animal cancer support group. He had Murphy back then too, and I remember how hard he fought for Malcolm and how devastated he was when Malcolm died. I hate cancer and what it does to families, and I know the pain Luke is feeling now.
I'm also really mad, because Luke has committed years of his life not only to helping his own animals, but the animals of strangers as well. After what he's been through, and what he's given back, shouldn't that give him a pass or something? Sadly, it doesn't. While I haven't done anything on the scale of Luke's project, I too have committed much of my life to helping other animals, through The Great Good Heart Animal Cancer Foundation. But still that didn't stop Indiana from getting cancer. Again.
Anyone who knows me well knows my religious faith is tenuous at best and has been for many years. This didn't start out with any kind of anger issues, but simply from too many questions without good answers. When Indiana got sick in 2006, I begged God to save her, and she was saved. By all accounts, it was a miracle. Over the years, we have experienced some good and more than our share of bad. I've gone back and forth in my faith (or lack thereof), and am currently residing in the "I don't know what the hell to think" phase.
But when I see something like this, it's hard to believe that there is a higher power exerting influence over our lives. What God allows cancer anyway? Especially to the dog of someone who loves him so much and has sacrificed so much to help others? I don't know the answer to this, and I never will. I'll continue to search for my own answers and for what makes sense to me. In the meantime, I'll be sending positive thoughts and love out to Luke and Murphy. Because love, that I do believe in.
Wednesday, February 2, 2011
Snow Day
Tuesday, February 1, 2011
Beginning the Experiment
I first heard about Poly-MVA early in Indiana's treatment for her first cancer. As she was doing well and the chemo worked to eradicate the cancer, our vet decided to hold Poly in reserve until we really needed it. In speaking with a vet friend over the weekend, she recommended using Poly on Indiana, for the sarcoma on her back. So while Indiana isn't in a crisis right now, we are looking for ways to slow the cancer without conventional treatment, as well as make her life as comfortable as possible. With the recommendation of our friend, and the okay of our vet, we decided to go ahead with the Poly.
I'll be documenting our experience with Poly-MVA, partly because, well, I have a pet blog, and also because I want other cancer parents to learn from our experience. Maybe it'll help, and maybe it won't, but either way, my posts about it will be honest and true to our lives.
I spoke with a consultant over the phone to order the Poly. Some things I learned: Poly can have a detox effect in the first few weeks. This scares me, because Indiana has done detox before, and it's always frightening to watch. Luckily, the consultant said we could increase her daily dosage of milk thistle (Poly, like most drugs and supplements, is metabolized in the liver--milk thistle has a tremendous ability to lessen the load on the liver) should detox symptoms occur. These symptoms include diarrhea and lethargy. I will no doubt be keeping a close eye out for these symptoms, though we're starting Indiana on a small dose and working our way up.
Also: Poly-MVA energizes the body's cells and therefore can give the dog more energy. Ideally, it is given three times a day, with meals, but the last dose needs to be given a few hours before bedtime so as not to disrupt the dog's sleep pattern. We've been feeding Indy three times a day for the last four and a half years, so that part isn't a problem. But we sometimes feed her right before bed, which isn't probably advisable once we start the Poly. So that'll require a minor adjustment on our parts.
Another thing I learned: Poly is staggeringly expensive. For a dog Indiana's size (70 lbs), one month's supply costs about $600. The company recommends trying the supplement for at least 60 days before discontinuing it (though improvements can be seen in the first month). I imagine she'll be on the max dose for those first several months, and then perhaps go on a lower "maintenance" dose, but I didn't have the heart to ask. If it's working, it doesn't matter. I'll pay any amount.
Some things I learned from our vet: Poly is completely safe. It's essentially lipoic acids (antioxidants) and B-vitamins. Studies have shown it to be more effective against carcinomas rather than sarcomas (which Indiana has). But it has other benefits beyond killing cancer cells. According to her, we have nothing to lose except money. That's good enough for me.
I've started doing a little more reading up on Poly-MVA, something I'll be doing a lot of in the next few weeks or months. It seems like an amazing supplement, and while I don't want to get my hopes up, it has the potential to really help Indiana, not just with the cancer, but with her overall health. I appreciated that the Poly-MVA consultant was careful to make sure I knew that Poly-MVA doesn't work in every case. So they're not trying to sell a "miracle drug," which makes me trust it more.
Our precious bottles are making their way to us as I type this and should (weather-willing) be here by the weekend. We'll start Indy on it ASAP, and I'll update frequently about how she is feeling while on it, and side effects (good and bad), any changes in the tumor, and general impressions about the supplement itself.
As always, I am learning as I go. Count Poly-MVA as just one more thing I've learned from my dog.