Showing posts with label U of I. Show all posts
Showing posts with label U of I. Show all posts

Tuesday, September 1, 2009

38 Months and Counting

My friend Shanele and I spent part of the day yesterday at the University of Illinois Small Animal Clinic for Indiana's twice-yearly appointment with oncology. I'm always a nervous wreck before these appointments. Even though Indiana is doing well, it seems like I'm always waiting for the other shoe to drop. We had a lot of bad news in the beginning, so I know things don't always go smoothly. Still, I know my dog, and I know she doesn't have cancer anymore.

I can't say as though I ever look forward to going, but it's become a pretty regular part of our lives, and I'm used to it. I take comfort in knowing what's going to happen. So of course yesterday, they had to change things. Normally, we start our visit by being led back to the private oncology waiting room, complete with couches for parents and furry kids alike. We chill out for a while until an oncologist comes to see us. They do an exam there in the little waiting room, and Indiana is taken away for blood tests, ultrasound, and x-ray. Otherwise, we all get to wait together.

But yesterday starts with a tech (not one of our regular ones!) taking us to an exam room...not our couches. I mention this, and she only says we can go to the couches later. Hmmm. I don't like change. After a very formal check-in (we've been coming here for over 3 years!), she tells us the doctor will be in soon...and not our usual doctor. Strike two. The visit with the doctor goes fine--she's one we've seen before, though she's a full doctor, not our usual resident. She has me sign forms and ok the costs for the procedures, something we've not had to do since Indiana first got sick. Huh? What's going on here? Why are we in this alternate-universe U of I???

After all that oddness is over, we are finally led back to our precious couches. Oh, sweet, fluffy couches. How I love you. You are so normal. The rest of the visit goes by much like usual. We see a couple of students, rather than a resident, because the department is short-handed right now. Indiana doesn't seem to like the unfamiliar faces. We're used to all of our usual people, who don't seem to be around today. Bah!

Overall, I can't really complain, because everything came back great. There is no sign of the cancer, and Indiana's heart arrhythmia, while still present, hasn't gotten any worse. There are a few age-related changes, which the doctor considers normal. (I'm just happy to still have a dog who's able to grow old!) Indy's BUN is high, though her creatinine is normal, most likely from her raw food diet, or from one of her supplements. I'm not overly concerned about this--I left Dr. Becker a message about it, and we'll see if she wants to run a fasting BUN sometime.

I was a tad irritated, because the release report mentioned something the vet hadn't--Indiana's adrenals are mildly bilaterally enlarged, more so than last time. I'm concerned this indicates a progression of the atypical Cushing's Disease she was diagnosed with about a year and a half ago. We'll see what Dr. Becker has to say about it.

But none of these things really worries me. The cancer isn't back, and Indiana feels better than she has in a long time. After cancer, nothing is insurmountable, and neither of these problems is life-threatening as they stand. Just like everything else, Indiana will kick ass.

Thursday, July 9, 2009

Life After Cancer

Last week I shared with you the story of how Indiana was diagnosed with cancer. Today I want to talk about what happened after.

The first month or so after Indiana got sick was an emotional rollercoaster. We were thrilled that Indiana had survived her surgery, but we still had the cancer to deal with. My poor dog had been through so much and looked like a patchwork dog.


My poor dog is missing hair all over,
including her beautiful mane of neck
hair. Her legs are all shaved too. I think
her eyes tell a story of what she went through
as well. Those are not my Indiana's eyes.

The only real problem we had with Indiana was nighttime incontinence for several weeks following surgery. Indiana sleeps in bed with us, and every night she would wet the bed. There's a lot of urine in a 90-pound dog. (Though at this point, she weighed closer to 80 pounds, having lost nearly 10 pounds in the 5 days in the hospital.) We started setting our alarm clock for 1 or 2 in the morning, and taking Indiana out to go to the bathroom. Our vet explained that the urinating was probably as a result of too much cortisol in her body--that's the body's stress hormone. Her body had been through such a shock that it was producing too much cortisol and that in turn was making her have to go to the bathroom a lot. In time, probably 2-3 weeks, the problem went away, and Indiana was fine. It was yet another sign though of what hell she had been through.

We returned to the U of I two weeks after Indy's surgery, at which time we were out of the woods, surgery-wise. Yay! We had found out in the previous weeks that Indiana's cancer was called leiomyosarcoma, a cancer of the smooth tissues. The oncologist told us that if you have to get cancer, it's one of the best ones to get, as it grows very slowly and can be cured. The surgeon had achieved clean margins with Indiana's tumor, but we still couldn't be 100% sure that there were no microscopic cancer cells floating around elsewhere in her body. The oncologist's recommendation was 4 rounds of chemotherapy. We knew that if the cancer ever came back, and we hadn't done any type of treatment, we would never forgive ourselves. We knew the chemo came with some risks, but the doctors would be very careful, and we had to give her a final chance to beat this cancer.

Prior to Indiana's first chemo treatment, the doctors ran an echocardiogram on her heart, to make sure it was strong enough to handle the chemo drugs (doxorubicin--which can be cardiotoxic). Imagine my shock when the oncologist came back and told us they had found a mass in her right atrium. My stomach dropped, and I just felt ill. My Mom was with me at the time, and I just remember crying once they took Indiana back for her chemo. How, after all we had been through, could there be something else?

The doctor explained to me that because the mass was on the inside wall of her heart--where all of the "electronics" are located--that a biopsy would be very dangerous and even life-threatening. Because the treatment for a heart mass (most likely hemangiosarcoma) would be the same as the treatment for her stomach cancer, we easily made the decision not to biopsy.

The doctors couldn't be sure what the mass was. Maybe it was cancer (again, most likely hemangiosarcoma, one of the worst cancers out there) or maybe it was a blood clot (which could dislodge and kill her instantly) or maybe it was something else entirely different. We wouldn't ever know. Though my heart was broken once again, I actually felt bad for our oncologist, who seemed not to want to share this news with us. He was so kind about it though.

Heart mass or not, Indiana's heart was strong enough for chemo, so we started that day. The first round gave her some nausea and diarrhea (which is scary after you've seen your dog nearly die after vomiting and pooing blood before), but after dose two, we learned to administer drugs to her proactively, to prevent the upset. She sailed through the rest of her treatments with no problems! I even joked that perhaps the vet tech forgot to give her any drugs, because she didn't act any differently.

Indiana received four doses of doxorubicin, each 21 days apart. After the fourth dose, our oncologist said he felt comfortable ending there--six is the max a dog can have anyway.

After the chemo was over, we did another echocardiogram, and the mass was still unchanged. We weren't sure if it was because the chemo was keeping the mass from growing, or because the mass wasn't responding. This was pretty disappointing. We wanted with all our hearts to find the mass gone. Why wasn't it responding to one of the most powerful chemo drugs out there?

After we found Indiana's heart mass, I was so frightened. Everything with the stomach mass had happened so quickly, that I didn't have time to really process it all. We just dealt with it. But now with this new problem, I was out of my mind. I needed to do everything to help her. Out of desperation, I decided to turn to holistics, to complement the traditional treatments we were doing. Our vets directed us to the most wonderful vet in the world, Dr. Karen Becker of Natural Pet Animal Hospital. You'll be hearing more about her later, because she is my hero. I'll have a whole post dedicated to Dr. Becker.

Dr. Becker was amazing, really easing our minds about the heart mass. She was sure it wasn't cancer. She set us up with all kinds of immune supplements and helped set up a diet transition to raw food (more about that too--I'm a HUGE fan of raw diets.) I left the visit with her, having hope for the first time in a long time.

After chemo was finished, life was able to start to return back to normal. At least our new normal. No more vet visits every three weeks--no visit for three months! We did have one scary episode, where Indiana started to waver and shake. We thought for sure the mass was a clot and had dislodged. She bounced back quickly from it though, so we're not sure what caused the episode.

Gradually, life slowed down again. The vet visits got farther and farther apart, and Indiana continued to thrive. To this day, the heart mass remains unchanged. We still don't know what it is. Indiana has developed a heart arrhythmia, possibly as a long-term side effect of the doxorubicin or just because she's 11 years old. Our oncology visits went from every three months to every six. The echocardiogram is now being done once a year. Indiana still takes a lot of pills, and we still see a lot of vets, but we're thrilled that she's still alive!

This experience has certainly changed our lives, and much of my time is dedicated to Indiana and our other pets. Feeding rituals are much more complicated now, we visit the physical therapist once a week, and I practically live at the local natural pet food store and Dr. Becker's office. I wouldn't trade an ounce of it though, because Indiana is still alive and well. I even forget about the cancer sometimes.

There is so much that I've learned, and so much that I am still learning. Indiana has taught me so much, and I am eternally grateful to her. Good things needed to come from her experience. Jim and I formed The Great Good Heart Animal Cancer Foundation, to help educate others about animal cancer. We learned the hard way, but others don't have to. I'm excited to share with you all that I've learned and to bring to you new and exciting ideas for you and your pets.


Tuesday, June 30, 2009

Indiana's Battle: The Story

Today is Indiana's Birthday--or at least, the day she was reborn free of cancer. Three years ago today, I nearly lost the furry love of my life. This is a post I've been dreading ever since I first thought about starting a blog. It's a very important story to tell, as it's made me who I am today, both as a parent and as a person.

As I start to write this, I can already feel butterflies in my stomach, a heavy feeling in my chest, and tears getting ready for their inevitable moment to shine. In three years, I've only written the story once or twice, and I've never actually talked about it, at least not all of it. It's been a defense mechanism for me, to keep the pain from overtaking me. I don't really want to write it now. I know the tears will flow and my heart will want to burst with pain. It sounds melodramatic, I know, but that day was more traumatic than I can even describe.

So be warned that this isn't an easy post to write, and it isn't an easy story to read. I do think it's important though--both for me to write it and you to read it. It helps you understand who I am, who Indiana is. While the story itself is heartbreaking, it does have a good outcome, and I hope it brings hope to others who feel like they are facing a future without hope. There is ALWAYS hope. So here we go.

In 2006, Indiana had been throwing up on and off for a few weeks. I should have been concerned about this, but I just figured that it happened sometimes with dogs. Perhaps she'd eaten something weird. In retrospect, the vomit was bloody, but at the time I just thought it was dark from food.

One day I was at my parents' house with the dogs. Indiana had been acting off, which worried me. We watched her go to the bathroom in the yard and walked over to see if it looked normal. It did not. Her stools were black and tarry. My Mom and I decided she needed to see the vet. We took her in, and they suspected a gastrointestinal bug. They gave her a steroid shot and some antibiotics and sent us home. The next day, Indiana did feel better, and I was so relieved. This was short-lasting though, as she grew more lethargic the following day.

Jim and I were supposed to go out of town for the party of some friends, but we postponed leaving to take her to the vet. I'll never forgive myself, because we nearly left. Her gums were pale, she wasn't feeling well, and I was still so torn because I had a responsibility to our friends, whom we were helping to organize the party. I had her in my Mom's car and nearly let her go. Ultimately, I just couldn't do it. Jim and I took Indy back to the vet. She had little energy and couldn't even stand for an exam.

I found out later that the vets suspected she was bleeding out from hemangiosarcoma, the most common cause of acute anemia.

Our vets did a blood test, and sent us home for the night, telling us they'd call in the morning but would most likely send us to the University of Illinois Vet Med Hospital. Why we didn't just take her then, I don't know.

The next morning will haunt me forever. I woke up early, around 6:00 a.m. Indiana wasn't with us in bed, which was unusual. I got up to look for her and couldn't find her. Eventually I found her laying under the back deck. I know now my precious baby had gone there to die. Oh, crap, here come the tears. I was able to get Indiana inside, but she had no energy, wouldn't eat, and her gums and tongue were pure white.

I finally got a hold of the vet at 7:30 a.m., and she only said, "I recommend taking her to the U of I right away." She got everything set up for us--calling ahead, making sure they were ready for Indiana.

Unfortunately, Jim couldn't go with us to the hospital. Our friends had left several days before, and we had all of the decorations and food for the party the next day---8 hours away. Thankfully, our friends arranged for their cousin to bring the supplies out to them, so Jim only had to drive a few hours up to the suburbs of Chicago. Still, I hated that he couldn't be with us.

My parents drove Indy and I down to the U of I. It was a horrible hour and fifteen minutes. Bless my Dad, because he drove much faster than usual to get my girl to the hospital. I just sat in the back of the van with her, on her bed, talking to her, loving her, telling her I loved her.

When we got to the U of I, we helped Indiana out of the car, and she promptly collapsed. My heart sank. This was bad. I ran in to get help while my parents stayed with Indiana. My Mom tells me that she said to Indiana, as they layed on the pavement, "Don't you dare die." U of I was great, because they immediately sent out some students with a gurney, so by the time I got back outside, they were already lifting her on. I couldn't go with her, because they needed to stabilize her. It was horrible letting her go, not knowing what would happen.

God, I had to walk away just now. I was crying so hard I couldn't see or breathe. I had to call my wonderful Mom, who listened and helped me feel better. I'm sitting on the back porch, on the swing, with Indiana at my feet. We're watching the cats wrestle. Back to the story.

After the students took Indiana, we were immediately led into a private waiting room, which I later learned was where they take grieving families so they can have privacy. This room would be our home for the next 12 and a half hours. A doctor, one of the most beautiful, wonderful human beings on the planet, Dr. Karine Eusanio, came in to give us a quick update and get approval for tests and treatments. She told us she couldn't stay with us long, as Indiana needed to be stabilized. She was very touch and go.

We were, over the course of many hours, told that Indiana was bleeding from a mass in her stomach. The blood packed cell volume of a normal dog is somewhere in the 40s--Indiana's was at 7 or 8, meaning she was incredibly anemic.

Jim had thankfully arrived by this point. He had no clue how serious Indiana's situation was. He didn't take the news well, but we needed each other, and clung to each other to survive. Thank God my parents were still there with us.

The doctors sort of recommended an endoscopy to biopsy the mass in Indiana's stomach. This surgery of course came with risks, all of which were amplified on my dying dog. We were told if the tumor was cancerous, they wouldn't pursue any further treatment.

The endoscopy was performed, and the surgeon, Dr. Thomas Graves, told us the tumor appeared benign. He was the first person to give us real hope all day. One of the oncology surgeons, whose name will never appear on the pages of this blog, said she disagreed with Dr. Graves, that the tumor was probably cancerous. Dr. Graves and Dr. Eusanio (and who knows who else) gave us our options at this point. We had two. Do surgery, or let her die. Without surgery, she would be dead before the day ended. Surgery would stop the bleeding, but they were convinced she'd die on the table because of her blood loss. The aforementioned, never-to-be-named oncology surgeon wouldn't do the surgery, because she was convinced it was cancer. Why save a dog, just so she'd have cancer? (Have I mentioned yet how much I hate her?) She never even met with us. If not doing the surgery meant Indiana would die, then we felt we had no option but to do the surgery.

Dr. Eusanio, who had at this point become our angel, understood us, and what was in our hearts, and knew we wanted the surgery done. I think she felt as well that Indiana wouldn't survive, but she wanted us to have the chance to try. They found a surgical resident (Dr. Tobin Eshelman, our other angel) who would do the surgery. He explained the surgery to us, as well as the risks, both surgical and post-op. He didn't know exactly what he'd find when he opened her up. I know everyone there thought we were grasping at straws to save this dog. They all felt bad for us, I think, but they were sure she'd die. Drs. Eshelman and Eusanio were honest about how grim our situation was.

When all of the paperwork was signed, and I had put down a hefty down-payment on the treatment (take every dollar I have--just save her!), the doctors told us they wanted us to come back to the ICU and say goodbye to Indiana. Not just until after the surgery. A real goodbye. Her chances of waking up were very slim, and that moment was looking like our last time to ever see her.

This is the part of the story that rips my heart into pieces. Jim and I walked into the ICU to see our dog for the first time all day. She looked horrible beyond words. She could barely lift her head or move at all. The doctors had her lying on the ground in front of her cage. There were doctors everywhere, watching closely for any changes, but giving us as much privacy as possible. We laid down on the ground next to our precious baby. I hungrily kissed her and smelled her, wanting to make those memories last forever, just in case. We talked to her and told her over and over how much we loved her. We told her that she was the best dog any parents could ever hope for, and that we were so lucky to have her in our lives. My Mom and Dad were able to come in for a few minutes to say goodbye as well. After they left, we only had a few more minutes before the doctors needed to work on another dog--parents aren't really supposed to be in the ICU at all, so we needed to leave soon. I hugged and kissed my precious baby, told her I loved her, and looked at her for what could have been the very last time.

The minute I walked out of that room, my heart broke into a thousand pieces. I was so heartbroken and angry. It wasn't fair that this was happening. I wanted Indiana well. This was all just a bad dream, wasn't it? Surely I would wake up soon. My heart ached for her, and my arms longed to hold her. I had taken a small piece of fuzz off of her fur when I saw her, and now that piece of fuzzy fur was my lifeline to her. Would it be the last part of her I would ever hold? The doctors promised that if she died on the table, they would allow us to come in and see her one last time.

The next four hours or so were the longest of my life. The hospital got quieter and quieter, as patients and then staff left for the day. I couldn't eat, read, sleep, or do anything. I listened intently for footsteps, praying every time that they weren't heading our way--it was still too soon. In my heartache and desperation, I made a pact with God. If only he would save her, I would give him something else special to me. Not another family member, but something still dear to me--my dream of being a singer. I was very early in my career at the time, and I was following a life-long dream, just a little later than most. I told God that I would give it up though, if it meant saving Indiana. Singing was who I was, but I was also nothing without my baby. Take it, I thought. Take it and save her. Just give me a sign it's what you want.

Just after 9:00 p.m., we saw Dr. Eusanio in the hallway. She told us that Indiana had come through the surgery, amazingly, and was being brought into recovery. Everyone was amazed that she had made it this far. It seemed that one big hurdle had been jumped. We waited another hour and a half for the surgeon to finish his last surgery. At 11:00 p.m., after Dr. Eshelman promised to call us if anything changed, we left the hospital and checked into a hotel. God Bless the Holiday Inn Express.

Nighttime passed without incident. We were anxious to get back to Indiana. To be honest, I remember little about the days that followed. They've all blurred together a bit for me. Indiana became over-hydrated from her IVs, and began having heart problems. That was scary, but she eventually pulled through. My parents came down every day to visit us--both Indiana as well as Jim and I. They would bring us lunch, and we'd sit in the park across from the hospital. I didn't want to go far from her, plus the park was where we had spent many evenings with Indiana while we were in college. I know we wouldn't have survived that week without my parents. We stayed in a hotel the first night but spent a few nights with our friends Tim and Beth. (Thank you both, if you ever read this--you'll never know how important seeing you was to us--it was such a needed break from the hospital).

Jim had to go back to work after a few days, so my Mom got a hotel for us and stayed with me. I had vowed not to go back home until Indiana was with me. I carried that piece of fuzzy hair in my pocket at all times, even when it became a matted mess. I also carried her leash and her favorite stuffed toy, Mr. Oppossum. I even took Mr. O into restaurants and stores. He was my link to her and my good luck charm. My sweet parents, who were babysitting Isis this whole time, brought another toy of Indiana's and placed some of Isis's hair on it. That way the toy could stay with Indiana, and she could smell home and her sister.

Indiana got better and better each day. We had been warned that she might be in the hospital up to two weeks, but after 5 nights in the hospital, they were ready to send her home. We weren't out of the woods yet, as her stomach staples could still leak. If that happened, there would be nothing they could do, and she would die. Still, she had overcome so much.

The day we brought her home was amazing! My Mom and I drove back home in the morning to get the house ready. Out went all of the old bones and chewies (Indiana was now missing an important part of her stomach and could easily get an intestinal blockage). The mattress went on the floor, so Indiana could just walk onto it and still sleep with us at night. That afternoon, my parents, Jim, and I, drove down and brought our baby home! It was bittersweet, as she had survived, yet she wasn't out of the woods yet. She also didn't seem all that excited to be home. I know now it was because of the stress of the surgery.

My precious girl recovered from serious gastric surgery--part of her stomach was removed along with the pyloric sphincter. She had a nearly 18 inch incision on her stomach and chest and more staples than I could count. Her two week window of stomach leakage came and went, and she continued to recover. My happy, beautiful dog came back to me again. So what if she was missing hair on her neck, all four legs, various patches on her sides, her stomach, and her butt. She was beautiful because she was Indiana, and she was alive.

I hope by reading this, you take away several things. First, miracles can and do happen. We were given a miracle that day. Second, always follow your heart. If we had listened to the doctors, our baby would be dead. Doctors don't always know best, but your heart does. Third, never give up hope, even when it seems like there is none. There is ALWAYS hope.

That day changed my life forever. Some for the bad, but mostly for the good. I am a far better parent today. I learned much the hard way, and that's why I'm working so hard to help others. I don't want anyone else to have to learn the way I did.

I am forever indebted to Dr. Eusanio and Dr. Eshelman. They gave me my baby back and helped us when others wouldn't. Both doctors are now gone from the U of I, and I know wherever they are today, the patients are better off because of them. I will remember them until the day I die.

Thank you to those of you who've made it this far in the story. Thanks for letting me tell it, really for the first time. It has done my heart good. My gorgeous girl still sits by my feet, keeping watch over the cats and the back yard. My dog is alive, well, and happy, and all is well with the world.